Act now in SURVEYS and RESEARCH, your experiences are of value!
Chairperson – Martine Caitlan
Martine Caitlan is a mother of two and has been suffering the effects of severe Chronic multi systemic Sarcoidosis since 2008 and symptomatic systemic damage, after acute symptoms manifested prior to 1997. Martine has full experience of the effects the illness has physiologically and physically from both ends of the spectrum. The knowledge and information gained since has been through her own experience, talking and working with sufferers worldwide, clinicians, specialists and in research.
Prior to Martine's illness (which changed her life overnight) she was a professional dancer since the age of 2, a Dance instructor/competitor and self-employed Dress Designer/maker. She also led a secondary varied career over the years including Quality Manager, internal auditor, Office manager roles. Her achievements include Lloyds LRQA internal QMS Auditor, ICS diploma in Fitness and Nutrition and teacher accredited in ISTD, NAD, BATD standard in all dance.
Martine has been working within the National voices as a patient advocate since 2008, which has opened up doors to networking with the relevant NHS sectors and professionals to help improve awareness for this illness.
Research is a huge factor in providing support to sufferers and ensuring clinicians know it’s available and continue pumping knowledge and awareness into the medical industry. Martine has been working for many years within the National Institute for health research, NIHR Respiratory Biomedical Research keeping her up to date with the in NHS and research information, processes and procedures. Within this field of expertise, she is able to obtain knowledge of other conditions, including those affecting sufferers and keep up to date with Sarcoidosis research.
Secretary – Claire Eve
Treasurer - Adrian Taylor
Adrian was a very active man. He owned several businesses, served in the police and was also a qualified pilot. Around 10 years ago he was coughing blood. This remained undiagnosed until he collapsed. Sarcoidosis was discovered via a CT scan for hernia and confirmed by a lung biopsy. Fatigue is the biggest issue with Adrian and took part in a fatigue trial at Norwich Hospital.
We are always in need of volunteers who are dedicated and motivated, who can work and take charge of the own work. If you are interested we would love to hear from you. Please send us your CV. with a letter giving details about yourself, the skills you can offer us and how you can help give your support.
Send it into firstname.lastname@example.org
Copyright © 2013 Martine Caitlan of the Sarcoidosis Association. Registration Number 330053. All rights reserved.